We had a busy week. Based on recommendations from Mayfield Clinic in Cincinnati, we sought followup opinions in three locations: Cleveland Clinic (Cleveland, OH), MD Anderson (Houston, TX) and University of California - San Francisco. I learned that several major brain tumor centers will provide a free second opinion that doesn't require the patient to travel. In my case, I was close enough to both Mayfield and Cleveland that I chose to be seen in person, and submitted my information through the mail to MD Anderson and UCSF.
Essentially, all four centers agree that my MRI is indicative of a growing meningioma, and that it does require treatment. As to be expected, there are slight differences in their recommendations, but the general consensus is that Fractionated Sterotactic Radiotherapy is the right treatment plan. I was also able to confirm my understanding that I'm going to have the best possible treatment in Cincinnati. Mayfield Clinic is one of the most experienced practices in the country for FSR, and I'll get the best possible care here.
The best news of the week is that the original tumor samples have been graded as WHO Grade 1. When I first sought an opinion from Mayfield Clinic, the tissue samples from the surgery in 6/03 were re-analyzed. Tumor grading standards have changed, and the first look at grading the original tumor by today's standards indicated the tumor was WHO Grade 2. About 95% of meningiomas are Grade 1 - benign. About 2-3% are Grade 2 - atypical, and 2-3% are Grade 3 - malignant. Treating a Grade 2 tumor meant a longer period of radiation, and greater risks of side effects, complications and another recurrence. As Connor (our ten year old) said "This is the best thing I've heard about that tumor in three weeks!"
I am grateful this week for getting closer to a final treatment plan, a great vacation with friends from college, and great support from our family and friends. I have seen so many seriously ill people in the waiting rooms with me this week, many of them alone. While this is not an easy situation, it would be unbearable alone. Thank you for being with me!
To More Grace,
Amy
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Amy,
This is the Eaton Family. Abigil was in Liam's class last year. We wanted to let you know that we will be praying for you, praying that the treatment will go smoothly and that your suffering will be light. If there is anything we can do please let us know.
Lots of prayers coming your way!
The Eaton Family
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